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New research & resources
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What counts as a 'public benefit' for data use?
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Working with patients & the public to explain access to health data
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Engaging with Black & South Asian people on equitable data collection
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Debating data: a mini citizens' jury during a perfect storm
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Dame Fiona Caldicott
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How are stories about health data covered in the UK media?
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Hello 2021
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Our response to the National Data Strategy consultation
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What we mean by trustworthy use of patient data
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Data partnerships and the pandemic: reflections from our parliamentary webinar
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The role of routine data in the fight against COVID-19
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Help us learn about health care professionals’ attitudes to the use of health data
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Lessons from setting up the INSIGHT Data Trust Advisory Board
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We've grown
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Revising the Caldicott Principles: our response
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What we learned from not talking about data
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There is no single truth about Covid-19
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Putting the Trust in Trusted Research Environments
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A new approach to decisions about data
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Creating the right conditions to involve the public in policymaking
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Data in the time of Covid-19
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The Issue with Tissue: towards a national registry of human tissue sampling
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How to talk about data without talking about data
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Easier said than done: the challenge of transparency during Covid-19
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Health data and Covid-19: taking action while maintaining trust
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Covid-19: we’re here for our community
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Accountability, transparency and public participation must be established for third-party use of NHS data
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Guest blog: How can patient data help us understand complex rare diseases?
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We're hiring! Partnerships and Community Manager role
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Using NHS Digital data to improve care
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We're hiring! Strategy and Engagement Manager role
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Safeguarding health data: 3 policy asks of the new Government
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Trading patient data: our view
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Hello again
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Guest blog: Building public trust in the use of health information to improve health and care
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Is being informed about patient data enough?
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Transparency: what is it and how do we improve it?
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Introducing the UPD resource quick-guide
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Guest blog: Using National Clinical Audit data to improve care quality
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Public engagement on partnership models involving NHS data
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Guest blog: People powered genomics
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Response to the National Data Guardian’s consultation on priorities
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Listening to patients and publics: a mix of methods, one coherent approach
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Public engagement in data sharing projects
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Joining-up work and busting jargon: an update from our December event
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Next steps for Understanding Patient Data
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Reflections on Understanding Patient Data
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Letter to the Secretary of State
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Principles that put people at the heart of new data technologies in health
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Summary report - Healthcare data: How do we get it right?
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Guest blog: How can third sector organisations support a transformation of patient care through data?
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Response to the consultation on the Centre for Data Ethics and Innovation
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Guest blog: Patient data at the Edinburgh festival fringe
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Guest blog: What does the public find reasonable when it comes to uses of patient data?
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Guest blog: How the voluntary sector has helped shape the national data opt-out
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TPP error for “Type 2” opt-outs
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Future uses of data and technology in the NHS
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DeepMind Health Independent Review Panel second annual report
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Charities explain how patient data underpins health research
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What’s the potential impact of the national data opt-out?
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Is the new national data opt-out just care.data all over again?
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Why an opt-out rather than an opt-in or consent?
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Local health and care record exemplars announced
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Guest blog: New Healthwatch England survey - careless data handling costs lives
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Changes to the Home Office – NHS Digital Memorandum of Understanding
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Data for public benefit: balancing the risks and benefits of data sharing
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Guest blog: Understanding the NHS isn’t easy
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Guest blog: Voluntary sector joins the conversation on patient data
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Health Select Committee repeats call to suspend data sharing for immigration purposes
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Data saves lives: animations
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Update on the Home Office – NHS Digital Memorandum of Understanding
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An Introduction to the GDPR – and what it means for patient data
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Guest blog: How giving patients access to health records can transform care - a GP’s perspective
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Guest blog: Why the MoU is not in the public's interest - BMA's views
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Cybersecurity in the NHS
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Memorandum of Understanding on data-sharing between NHS Digital and Home Office
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UPD response to release of cancer patient data to tobacco company
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A look ahead: patient data in 2018
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Guest blog: How giving patients access to health records can transform care - today and in the future
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Guest blog: How my work with GPs uses patient data to improve patient safety
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Guest blog: Who has access to data about my treatment and care?
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Guest blog: Patient data saves lives, let's acknowledge it
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Guest blog: How giving patients access to health records can transform care - a patient’s perspective
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Guest blog: Unifying the medical research charities conversation on data
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Guest blog: Data management and use - Governance for the 21st Century
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Government response to the Caldicott Review
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Open letter from charities following the Government's response to the National Data Guardian Review
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New technologies using patient data – meeting summary
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DeepMind Health Independent Review Panel first annual report
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ICO ruling on Royal Free London and DeepMind deal
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What do we mean by ‘public benefit’?
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Horizon scanning and new technologies using patient data
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UPD response to concerns about Royal Free London and DeepMind deal
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UPD response to NHS cyber attack
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Caldicott Review update
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Launch of UPD
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Launch of Understanding Patient Data website
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New words and pictures to explain anonymisation
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Guest blog: New Scottish SPIRE campaign
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News
Find out more about what we are up to, the latest news stories about patient data, and guest blogs.