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Find out more about what we are up to, the latest news stories about patient data, and guest blogs.

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All Commercial access (4)Data Policy (5)Guest blogs (20)National data opt-out (9)Security (2)UPD update (20)
  • 9 Jun 2022

    New resources: explaining patient data in an accessible way

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  • 31 May 2022

    Deepening our understanding of barriers to equitable health data collection for Black & South Asian people

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  • 26 Apr 2022

    New research: insights from Black & South Asian people on patient data

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  • 2 Mar 2022

    New research: primary care professionals’ views on the use of health data

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  • 31 Jan 2022

    Equitable data collection: can you deliver the next stage? 

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  • 10 Jan 2022

    Hello 2022

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  • 1 Nov 2021

    Work with us to develop resources on datasets & pseudonymisation

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  • 26 Oct 2021

    What’s next for Understanding Patient Data

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  • 29 Sep 2021

    Explaining the role of patient data in health charities’ guidance

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  • 8 Sep 2021

    The what & why of trusted research environments

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  • 2 Sep 2021

    What we know about communicating how health data is used 

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  • 12 Aug 2021

    Our recommendations for the data strategy for health & care

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  • 5 Aug 2021

    The future of Understanding Patient Data

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  • 1 Jul 2021

    Listening to Black & South Asian people’s views on health data

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  • 15 Jun 2021

    Trustworthy use of GP data: what must happen now 

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  • 8 Jun 2021

    We're looking for an evaluator for a new project

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  • 27 May 2021

    Our perspective on the new system for GP data

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  • 6 May 2021

    New research & resources

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  • 15 Apr 2021

    What counts as a 'public benefit' for data use?

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  • 16 Mar 2021

    Working with patients & the public to explain access to health data

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  • 23 Feb 2021

    Engaging with Black & South Asian people on equitable data collection 

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  • 17 Feb 2021

    Debating data: a mini citizens' jury during a perfect storm

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  • 15 Feb 2021

    Dame Fiona Caldicott

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  • 3 Feb 2021

    How are stories about health data covered in the UK media?

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  • 7 Jan 2021

    Hello 2021

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  • 17 Dec 2020

    Our response to the National Data Strategy consultation

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  • 9 Dec 2020

    What we mean by trustworthy use of patient data

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  • 17 Nov 2020

    Data partnerships and the pandemic: reflections from our parliamentary webinar

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  • 12 Nov 2020

    The role of routine data in the fight against COVID-19 

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  • 2 Nov 2020

    Help us learn about health care professionals’ attitudes to the use of health data

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  • 30 Oct 2020

    Lessons from setting up the INSIGHT Data Trust Advisory Board

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  • 8 Oct 2020

    We've grown

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  • 17 Sep 2020

    Revising the Caldicott Principles: our response

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  • 2 Sep 2020

    What we learned from not talking about data

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  • 4 Aug 2020

    There is no single truth about Covid-19

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  • 28 Jul 2020

    Putting the Trust in Trusted Research Environments

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  • 8 Jul 2020

    A new approach to decisions about data

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  • 30 Jun 2020

    Creating the right conditions to involve the public in policymaking

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  • 16 Jun 2020

    Data in the time of Covid-19

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  • 29 May 2020

    The Issue with Tissue: towards a national registry of human tissue sampling

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  • 28 Apr 2020

    How to talk about data without talking about data 

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  • 21 Apr 2020

    Easier said than done: the challenge of transparency during Covid-19

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  • 17 Apr 2020

    Health data and Covid-19: taking action while maintaining trust 

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  • 19 Mar 2020

    Covid-19: we’re here for our community

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  • 2 Mar 2020

    Accountability, transparency and public participation must be established for third-party use of NHS data

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  • 28 Feb 2020

    Guest blog: How can patient data help us understand complex rare diseases?

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  • 25 Feb 2020

    We're hiring! Partnerships and Community Manager role

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  • 13 Feb 2020

    Using NHS Digital data to improve care

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  • 20 Jan 2020

    We're hiring! Strategy and Engagement Manager role

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  • 13 Dec 2019

    Safeguarding health data: 3 policy asks of the new Government

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  • 10 Dec 2019

    Trading patient data: our view

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  • 5 Dec 2019

    Hello again

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  • 30 Jul 2019

    Guest blog: Building public trust in the use of health information to improve health and care

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  • 17 Jun 2019

    Is being informed about patient data enough?

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  • 17 Jun 2019

    Transparency: what is it and how do we improve it?

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  • 28 May 2019

    Introducing the UPD resource quick-guide

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  • 16 May 2019

    Guest blog: Using National Clinical Audit data to improve care quality

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  • 13 May 2019

    Public engagement on partnership models involving NHS data

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  • 9 May 2019

    Guest blog: People powered genomics

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  • 26 Mar 2019

    Response to the National Data Guardian’s consultation on priorities

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  • 11 Mar 2019

    Listening to patients and publics: a mix of methods, one coherent approach

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  • 15 Feb 2019

    Public engagement in data sharing projects

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  • 9 Jan 2019

    Joining-up work and busting jargon: an update from our December event

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  • 8 Jan 2019

    Next steps for Understanding Patient Data

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  • 10 Dec 2018

    Reflections on Understanding Patient Data

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  • 5 Dec 2018

    Letter to the Secretary of State

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  • 29 Nov 2018

    Principles that put people at the heart of new data technologies in health

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  • 19 Oct 2018

    Summary report - Healthcare data: How do we get it right?

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  • 2 Oct 2018

    Guest blog: How can third sector organisations support a transformation of patient care through data?

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  • 12 Sep 2018

    Response to the consultation on the Centre for Data Ethics and Innovation

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  • 31 Aug 2018

    Guest blog: Patient data at the Edinburgh festival fringe

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  • 21 Aug 2018

    Guest blog: What does the public find reasonable when it comes to uses of patient data?

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  • 31 Jul 2018

    Guest blog: How the voluntary sector has helped shape the national data opt-out

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  • 3 Jul 2018

    TPP error for “Type 2” opt-outs

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  • 28 Jun 2018

    Future uses of data and technology in the NHS

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  • 15 Jun 2018

    DeepMind Health Independent Review Panel second annual report

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  • 11 Jun 2018

    Charities explain how patient data underpins health research

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  • 25 May 2018

    What’s the potential impact of the national data opt-out?

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  • 25 May 2018

    Is the new national data opt-out just care.data all over again?

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  • 25 May 2018

    Why an opt-out rather than an opt-in or consent?

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  • 23 May 2018

    Local health and care record exemplars announced

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  • 18 May 2018

    Guest blog: New Healthwatch England survey - careless data handling costs lives

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  • 11 May 2018

    Changes to the Home Office – NHS Digital Memorandum of Understanding

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  • 26 Apr 2018

    Data for public benefit: balancing the risks and benefits of data sharing

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  • 23 Apr 2018

    Guest blog: Understanding the NHS isn’t easy

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  • 19 Apr 2018

    Guest blog: Voluntary sector joins the conversation on patient data

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  • 16 Apr 2018

    Health Select Committee repeats call to suspend data sharing for immigration purposes

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  • 12 Mar 2018

    Data saves lives: animations

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  • 9 Mar 2018

    Update on the Home Office – NHS Digital Memorandum of Understanding

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  • 6 Mar 2018

    An Introduction to the GDPR – and what it means for patient data

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  • 5 Mar 2018

    Guest blog: How giving patients access to health records can transform care - a GP’s perspective

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  • 8 Feb 2018

    Guest blog: Why the MoU is not in the public's interest - BMA's views

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  • 7 Feb 2018

    Cybersecurity in the NHS

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  • 16 Jan 2018

    Memorandum of Understanding on data-sharing between NHS Digital and Home Office

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  • 15 Jan 2018

    UPD response to release of cancer patient data to tobacco company

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  • 5 Jan 2018

    A look ahead: patient data in 2018

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  • 15 Dec 2017

    Guest blog: How giving patients access to health records can transform care - today and in the future

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  • 14 Dec 2017

    Guest blog: How my work with GPs uses patient data to improve patient safety

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  • 8 Dec 2017

    Guest blog: Who has access to data about my treatment and care?

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  • 18 Sep 2017

    Guest blog: Patient data saves lives, let's acknowledge it

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  • 18 Sep 2017

    Guest blog: How giving patients access to health records can transform care - a patient’s perspective

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  • 24 Jul 2017

    Guest blog: Unifying the medical research charities conversation on data

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  • 17 Jul 2017

    Guest blog: Data management and use - Governance for the 21st Century

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  • 12 Jul 2017

    Government response to the Caldicott Review

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  • 12 Jul 2017

    Open letter from charities following the Government's response to the National Data Guardian Review

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  • 10 Jul 2017

    New technologies using patient data – meeting summary

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  • 5 Jul 2017

    DeepMind Health Independent Review Panel first annual report

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  • 3 Jul 2017

    ICO ruling on Royal Free London and DeepMind deal

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  • 26 Jun 2017

    What do we mean by ‘public benefit’?

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  • 19 May 2017

    Horizon scanning and new technologies using patient data

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  • 15 May 2017

    UPD response to concerns about Royal Free London and DeepMind deal

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  • 15 May 2017

    UPD response to NHS cyber attack

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  • 28 Apr 2017

    Caldicott Review update

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  • 12 Apr 2017

    Launch of UPD

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  • 6 Apr 2017

    Launch of Understanding Patient Data website

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  • 6 Apr 2017

    New words and pictures to explain anonymisation

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  • 30 Mar 2017

    Guest blog: New Scottish SPIRE campaign

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