The Covid-19 pandemic raised some interesting and difficult challenges around patient data. Over the course of the pandemic, we put out a number of news articles on the topic – as we make some edits to our news page, we wanted to bring the content of those articles together in one place.
An Intelligent Health webinar brought together discussants from across the world to talk about the long-term implications of how data is being used in the response to Covid-19, with three key reflections for organisations using health data.
A discussion of the challenges of getting transparency right especially during Covid-19, and the reflections of the UPD team on transparency in their own work.
A discussion of how the infrastructures, partnerships and new norms established during Covid-19 may impact on the future of health data in the UK.
Miles Sibley, Director at the Patient Experience Library, explains why we need to look at qualitative data to really understand the impact of Covid-19 on people’s lives.
Dr Marion Mafham leads the data linkage team for the UK’s landmark Randomised Evaluation of COVid-19 thERapY (RECOVERY) trial. She describes the key role that routine patient data is playing in the world’s largest clinical trial investigating effective treatments for COVID-19.
We outlined the key findings from our report investigating what the public thinks about third parties accessing NHS-held data to the All Party-Parliamentary Group for Data Analytics and the All Party Parliamentary Health Group.