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Patient data: a history, and role of the media
Learn moreThis web page provides information about the history of patient data initiatives and the role of the media in shaping narratives about data.
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What do members of the public think
Learn moreLearn more about what members of the public think about the use of patient data, and find links to relevant studies to support your writing
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Live and forthcoming policy debates
Learn moreRead about the key debates driving policymaking about health data.
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Tips for writing about patient data
Read the tipsLooking for the best ways to explain the complex topic of health data, or curious about the best terminology to use?
Ways we can help you
With major developments in health data policy and practice, there is likely to be an increase in the number of stories pitched regarding health data, and increased interest from members of the public.
Understanding Patient Data is an independent initiative supporting better conversations about health data. We can help you with…
- Introductory briefings: Want to learn more about the topic? Reporting about patient data for the first time? We can share written briefings or speak to you about the patient data landscape.
- Requests for comment: If you are looking for a comment on the record for a story, feel free to contact us.
- Questions answered: If we don’t know the answer, we can put you in touch with someone who does.
- Briefing for specific stories: If you are working on a story and want information about a particular topic or recommendations for how to improve the accuracy or accessibility of the reporting, we can help.
- Further resources: We can signpost you to more detailed research or resources.
Further information:
You may also be interested in some of our other website content:
- Frequently asked questions
- Introduction to health data - a slide deck summarising the basics about health data
- Guide to talking about health data
- Summaries and explainers about key health data policies and legislation
- How data is kept safe
- How private sector organisations access and use data
- What are the risks of using data
- How are decisions about data made
- What choices do people have and information about opting out
- Our research on what language and words are best to use when talking about patient data