An introduction to the way that health data is gathered, stored and used in the NHS today.
This guide aims to address questions that people often have about how data about health is used, and explain key terms related to large datasets – including anonymisation and pseudonymisation.
UPD commissioned Open Creative Communications to develop the guide in collaboration with our team, a group of health data experts and members of the public.
It is available under a creative commons license and we encourage other teams and organisations to host it themselves, adapt it and use it however best suits your organisation's outreach and engagement on the topic of large health datasets (within the license!).
Alongside the guide, we have produced animations, social media graphics and a poster. Use the link below to download it.
Alongside the guide, we've produced a media pack with assets to help with promotion. Read these instructions on how to use the assets and then download them below.
Social media: A guide with some draft social posts, and a series of social media stills:
Animations: which are available on our YouTube account. Drop us an email if you'd like the raw files.
Poster: To put up in hallways, waiting rooms etc.
If you've got questions, feedback or want access to the animations for this work, write to us at: hello@understandingpatientdata.org.uk.
