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Case studies

There is a wide range of ways that patient data can be used to provide better care and improve health. Explore the case studies to learn more. Please let us know if you have good examples to share.

Impact of work
  • Diagnosis (11)
  • Individual care (21)
  • Patient safety (14)
  • Planning (26)
  • Policy (17)
  • Treatment and prevention (48)
  • Understanding disease (25)
Disease type or population group
  • Asthma (7)
  • Autism (1)
  • Cancer (20)
  • Cardiovascular disease (13)
  • Carers (1)
  • Child and paediatric health (2)
  • COPD (4)
  • Cystic fibrosis (1)
  • Dementia (4)
  • Diabetes (5)
  • Genetic diseases (1)
  • Infectious disease (7)
  • Kidney disease (3)
  • Mental health (6)
  • Motor neurone disease (1)
  • Multiple sclerosis (1)
  • Musculoskeletal conditions (6)
  • Obesity (1)
  • Parkinson's (1)
  • Pregnancy and maternal health (4)
  • Rare diseases (3)
  • Reproductive health (1)
  • Stroke (1)
  • Vision (1)
Sources of data
  • Cancer Registration (11)
  • Clinical audit (3)
  • GP records (24)
  • Hospital Episode Statistics (HES) (21)
  • Office for National Statistics (ONS) (6)
  • Research cohorts (5)
Location
  • England (22)
  • Europe (3)
  • International (6)
  • Northern Ireland (1)
  • Scotland (4)
  • UK (33)
  • Wales (3)
Type of organisation
  • Charity (38)
  • Commercial organisation (14)
  • Government (25)
  • NHS (34)
  • University (36)
Media
  • Case study with video (6)
  • Understanding the needs of children with vision impairment or blindness

    Using patient data to find out how many children have vision impairment or blindness, which then led to better screening.

    • Planning
    • Policy
  • Improving newborn screening

    Using patient data to better screen for, and look after, newborn babies with congenital hypothyroidism.

    • Individual care
    • Diagnosis
  • Targeting back pain treatment to those most in need

    Using patient data to stratify risk of long term disability.

    • Individual care
  • Extending the UK flu vaccination programme

    Using surveillance data to justify vaccinating children against flu

    • Treatment and prevention
    • Policy
  • Follow up for people discharged from hospital after a heart attack

    Linking three datasets to monitor drug adherence outside of hospital

    • Understanding disease
  • Demonstrating the safety of oral contraceptives

    Using long term data to understand the effects of widely used drugs

    • Patient safety
  • Analysing the link between radiotherapy for Hodgkin Lymphoma and breast cancer

    Understanding more about the impact of radiotherapy at a young age

    • Treatment and prevention
  • Learning more about blood cancer

    Data from thousands of people is giving new insights into blood cancer

    • Understanding disease
    • Diagnosis
    • Treatment and prevention
    • Planning
  • Understanding the needs of people with cancer

    Assessing the concerns of people with cancer using an electronic tool

    • Individual care
    • Planning
  • Improving management of chronic kidney disease

    Monitoring blood test results alerts GPs if a person’s health is deteriorating

    • Individual care

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