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Using data to identify and approach people for research: a public dialogue in Wales
Welsh Government commissioned the National Centre for Social Research (NATCEN) to conduct a deliberative public dialogue exercise to explore views on the use of health data for identifying and approaching individuals about research studies that may be relevant to them, without prior consent. The exercise involved 35 participants in Wales, engaging with researchers across 4 sessions (3 online, 1 in-person) including a full day deliberation session. The report of the exercise concluded that recruitment processes reliant on un-consented patient data to identify and approach people for research studies could be deemed to satisfy a broad constituency within the dialogue, provided conditions were met. These conditions were broadly grouped into categories including: effective oversight, focus on quality of research and equality of access to studies; demonstrating public benefit; effective public consultation on plans for such services; and transparency of processes and uses.
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How is health data used in the current measles outbreak?
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Archived case studies
Find out how to access our old case studies
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Predicting A&E admissions to improve preparedness
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Developing chatbots to address ethnic disparities in STIs
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Identifying long stay patients in hospital using AI
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Public views about AI in healthcare
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A mini citizens’ jury to debate data
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OneLondon Citizens’ Summit
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Preparedness to prevent future pandemics