Following the statutory establishment of integrated care systems (ICSs) the success of integrated care relies on more joined-up data collection from multiple sources and provides an opportunity to leverage this data to deliver health improvements and drive progress on ICSs’ four key aims.
Despite the benefits of increased data use and linkage, more progress needs to be made on digital maturity and joining-up of data. Patients and members of the public often know relatively little about what data is collected in the NHS and why it is used. When thinking about health data, people often think about their GP or local hospital using data for individual care; findings from recent workshops suggest the public are less aware of the role of other organisations that collect and access patient data.
This means that there is an opportunity to improve transparency and public understanding of how ICSs use data (across individual care, planning, research and any other uses), why data is important to them, what they can and cannot do with it, and how this can work in a trustworthy way.
We are seeking support from an external contractor to:
- Undertake research including interviews or workshops and desk research to understand the current state of patient data usage in English ICSs
- Draft a brief report that sets out the findings of the research, including case studies, recommendations or best practice as appropriate
This project is the first part of a two-stage programme, to be commissioned separately. Following on from this first phase of the project, the plan is to follow up on the findings with engagement with patients and the public about data use and linkage in ICSs.
We anticipate the project will run from early January to the end of March 2024.
More information can be found in the project brief below. The deadline for submitting a proposal is 17:00 on 17th November 2023.
If you have any questions, please do not hesitate to contact us through our team inbox: hello@understandingpatientdata.org.uk