• Why is it important to use patient data?

    There is huge potential to use patient data for care and to improve health, care and services across the NHS. The information can be used to help:

    • improve individual care
    • understand more about disease risks and causes
    • improve diagnosis
    • develop new treatments and prevent disease
    • plan NHS services
    • improve patient safety
    • evaluate government and NHS policy.

    Find out more in our explainer and searchable bank of case studies. 

    Case studies
  • How is data kept safe?

    It is essential that patient data is kept safe and secure, to protect your confidentiality.

  • What are the risks?

    We need to get better at talking about the risks and any possible harms when data is used, so that people can weigh up the risks and benefits for themselves. It’s really important that we do this well and so we want to take some time to get it right. We’ll have a resource discussing these issues in more detail here soon.

  • FAQS

    What is patient data, who can access it and why – find out more here.

  • Coming soon

    We are working on further resources to add to this site, including:

    • A series of animations to show what happens to information from your patient record when you’re treated in the NHS.
    • More information on what types of commercial organisations have access to patient data and why.
    • A resource to help you talk about the risks when data is used.
    • An animation to unpack more detail behind the spectrum of identifiablity and safeguards.
    • More information on what's allowed and not allowed, and what choices you have.  

    If you want to know more about what we’re doing, please contact hello@understandingpatientdata.org.uk

  • Identifiability demystified

    People want to know whether they could be identified when data about them is used. What does anonymised data really mean?