A number of studies have explored how people feel about the use of patient data, with fairly consistent findings.
People are generally comfortable with anonymised data from medical records being used for improving health, care and services, for example for research, provided there is a public benefit. The more informed people feel, the more they are likely to support these uses. Many are uncomfortable with the idea of companies accessing their health data, and there are particular concerns about information being passed on for marketing or insurance purposes.
In this video, Rebecca and Emily talk through some of what we know about public attitudes to the use of patient data.
We have brought together studies on public attitudes to patient data. We have organised these into three decks, summarising the key themes and papers/reports from:
- 2010-2018
- 2018-2021
- 2021-2024
We'll continue to add to the 2021-2024 deck as new studies are released until the end of 2024, so if you have a new release to suggest or notice we have missed something, let us know.