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Case studies

There is a wide range of ways that patient data can be used to provide better care and improve health. Explore the case studies to learn more. Please let us know if you have good examples to share.

Impact of work
  • (-) Diagnosis (11)
  • (-) Individual care (21)
  • Patient safety (14)
  • Planning (26)
  • Policy (17)
  • Treatment and prevention (48)
  • Understanding disease (25)
Disease type or population group
  • Asthma (4)
  • Autism (1)
  • Cancer (6)
  • Cardiovascular disease (4)
  • Child and paediatric health (1)
  • COPD (2)
  • Dementia (2)
  • Diabetes (2)
  • Genetic diseases (1)
  • Infectious disease (2)
  • Kidney disease (3)
  • Mental health (1)
  • Musculoskeletal conditions (1)
  • Parkinson's (1)
  • Pregnancy and maternal health (2)
  • Rare diseases (1)
Sources of data
  • Cancer Registration (5)
  • Clinical audit (1)
  • GP records (8)
  • Hospital Episode Statistics (HES) (8)
  • Office for National Statistics (ONS) (2)
  • Research cohorts (3)
Location
  • England (8)
  • Europe (1)
  • International (2)
  • Scotland (2)
  • UK (14)
Type of organisation
  • Charity (18)
  • Commercial organisation (5)
  • Government (8)
  • NHS (16)
  • University (14)
Media
  • Case study with video (5)
  • Improving newborn screening

    Using patient data to better screen for, and look after, newborn babies with congenital hypothyroidism.

    • Individual care
    • Diagnosis
  • Targeting back pain treatment to those most in need

    Using patient data to stratify risk of long term disability.

    • Individual care
  • Learning more about blood cancer

    Data from thousands of people is giving new insights into blood cancer

    • Understanding disease
    • Diagnosis
    • Treatment and prevention
    • Planning
  • Understanding the needs of people with cancer

    Assessing the concerns of people with cancer using an electronic tool

    • Individual care
    • Planning
  • Improving management of chronic kidney disease

    Monitoring blood test results alerts GPs if a person’s health is deteriorating

    • Individual care
  • Early diagnosis of dementia

    Researching the earliest changes in the development of dementia

    • Understanding disease
    • Diagnosis
    • Treatment and prevention
  • Supporting research into rare kidney disease

    Using registry data to search for treatments for rare diseases

    • Individual care
    • Understanding disease
    • Treatment and prevention
  • Improving dialysis treatment in the UK

    Linking data to analyse kidney patients' treatment

    • Individual care
    • Treatment and prevention
    • Planning
  • Getting people with COPD more involved in their own healthcare

    Using data to support people to manage their COPD

    • Individual care
    • Planning
  • Planning services for people living with and beyond cancer

    Using patient data to look at what happens to someone after receiving a cancer diagnosis

    • Individual care
    • Treatment and prevention
    • Planning

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