Case studies | Understand Patient Data

Monitoring the long term safety of cystic fibrosis drugs

Using the UK Cystic Fibrosis Registry to improve care and safety
- Treatment and prevention
- Patient safety
Supporting research into rare kidney disease

Using registry data to search for treatments for rare diseases
- Individual care
- Understanding disease
- Treatment and prevention
Improving dialysis treatment in the UK

Linking data to analyse kidney patients' treatment
- Individual care
- Treatment and prevention
- Planning
Tracking Parkinson's

Improving understanding of the biological changes involved in Parkinson's
- Understanding disease
- Diagnosis
- Treatment and prevention
Disproving the link between the MMR vaccine and autism

Conclusively demonstrating that there is no link between the MMR vaccine and autism
- Individual care
- Understanding disease
- Treatment and prevention
- Patient safety
Living with Multiple Sclerosis

Collecting self reported data to better understand the lives of people with MS
- Understanding disease
- Treatment and prevention
- Policy