Putting people at the centre of decisions about patient data
Research, advocacy and
communication to make the way
patient data is used more
trustworthy
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Learn about how patient data is used and why it's important
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Use our research and resources to explain patient data
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Find out how we work and ways to partner with us
We work with patient groups, charities, NHS organisations and policymakers to bring transparency, accountability and public involvement to the way patient data is used.
Get in touch to partner with us.
Latest news
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Blog: How using linked data can help us understand the relationships between child health and education
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Blog: What is the Confidentiality Advisory Group, and why does it need people like you?
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The story of the R number: how an obscure epidemiological figure took over our lives
Read more