This is the largest ever study using the data of people with Parkinson’s and aims to help understand the biological changes that happen when someone has this complicated condition. Researchers are hoping to find small changes in the body that could either help diagnose Parkinson’s or identify new ways to treat the disease.

Why is this work needed?

There is currently no cure for Parkinson’s disease, even though it affects over 125,000 people in the UK alone. Although there are treatments to help with some of the symptoms, current medications do not stop or slow the disease, which gets progressively worse.

What is happening?

Tracking Parkinson’s is the world’s largest ever detailed study of people with Parkinson’s disease, with over 2,000 people from across the UK taking part. The research is hoping to identify subtle but measurable changes in the body that could be used to diagnose Parkinson’s and measure how severe it is.

What are the benefits likely to be?

Parkinson’s UK believes that small changes in the body, or ‘biomarkers’, are key in finding a cure for Parkinson’s. They could be used for accurate and earlier diagnosis, meaning that people are more likely to be able to benefit from any new treatments. Scientists may also be able to more precisely measure the progress of the disease, which is vital to provide the best care and help manage the condition.

What type of data is involved?

Researchers are collecting a range of data, including blood samples and interviews, about people with Parkinson’s and their siblings.

Everyone participating in the study consented to having their data collected and used in this way.

Who is funding and collaborating on this work?

Parkinson’s UK is funding this work.

Where can I go for more information?

Tracking Parkinson’s