Case studies | Understand Patient Data

Understanding the needs of children with vision impairment or blindness

Using patient data to find out how many children have vision impairment or blindness, which then led to better screening.
- Planning
- Policy
Improving newborn screening

Using patient data to better screen for, and look after, newborn babies with congenital hypothyroidism.
- Individual care
- Diagnosis
Targeting back pain treatment to those most in need

Using patient data to stratify risk of long term disability.
- Individual care
Analysing the link between radiotherapy for Hodgkin Lymphoma and breast cancer

Understanding more about the impact of radiotherapy at a young age
- Treatment and prevention
Learning more about blood cancer

Data from thousands of people is giving new insights into blood cancer
- Understanding disease
- Diagnosis
- Treatment and prevention
- Planning
Understanding the needs of people with cancer

Assessing the concerns of people with cancer using an electronic tool
- Individual care
- Planning
Using GP records to learn more about the health of carers

Learning more about carers to ensure they get the support they need
- Planning
- Policy
Using social media to better understand rheumatoid arthritis

Understanding the real world experience of patients through online support group data
- Treatment and prevention
- Patient safety
Understanding the impacts of genes, lifestyle and environment

UK Biobank stores health data on 500,000 volunteers to provide a resource for researchers
- Understanding disease
- Treatment and prevention
Screening for ovarian cancer

Recruiting women to participate in a trial to assess the costs and benefits of screening
- Diagnosis
- Planning
- Patient safety
- Policy