We’re excited to announce the launch of our new website for Understanding Patient Data.
Everyone should be able to find out how patient data is used, by who and why, how data is kept safe, who makes the decisions and what your choices are. This site, beginning with ‘what you need to know’, provides objective information that can be used by anyone to help explain the basics. There is also a searchable set of case studies, giving examples of the wide range of different ways that using data can be used to improve our health. These range from evaluating the safety of vaccinating pregnant women against whooping cough, to understanding why diabetes rates vary between ethnic groups.
The website is aimed at anyone who is having conversations with the public about the use of patient data – whether that be charities, the NHS, healthcare professionals, policy makers or journalists. We want to help share best practice, and we’ll be highlighting the latest ideas and research to help support better discussions.
The site is still in development, and we will continue to add further resources and functionality over the next weeks and months. Please let us know what you think, and if there’s anything you would like to see here, do get in touch.